Thursday, May 17, 2012





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Infant Loss Organizations

The following list of organizations reflect a combination of infant loss organizations and related grief recovery organizations. Some of these organizations maintain web sites and others can be contacted by mail or telephone. If you would like your organization listed here, please contact us and provide us with your comprehensive contact information.


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Description Contact Information
Alliance for Infant Survival: Embraces families touched by the sudden, unexpected or accidental loss of a child from birth to age 2. Alliance for Infant Survival
2701 Burchill Road North
Fort Worth, TX  76105

(817) 534-0814 Ext. 2359
pmcgrew@ccdofw.org
Angel Names Association: Assisting families of stillborn children through programs designed to provide financial assistance for end-of-life expenses & counseling services & funding for stillbirth research. mgmosca@msn.com
CLIMB: Center for Loss In Multiple Birth. CLIMB
P.O. Box 1064
Palmer, AK  99645

907-746-6123 Telephone
Fertility Challenge Support: Support for those struggling with fertility issues. Support groups meet in the Dallas/Fort Worth metroplex. 817-656-9566 Telephone
First Candle/SIDS Alliance: Promotes infant health and survival during the prenatal period through two years of age. They do this through advocacy, education and research. SIDS and other infant death bereavement services are also part of their mission. First Candle/SIDS Alliance
1314 Bedford Ave
Suite 210
Baltimore, MD  21208

800-221-7437 Telephone
info@firstcandle.org
Footprints Ministry, Inc: A Christian organization that publishes a free newsletter for families who have lost children of any age for any reason. Footprints Ministry, Inc
PO Box 44153
Charlotte, NC  28215

sjmudge@ctc.net
Funeral and Cemetery Services: Provides information for those who may be facing the difficult task of making the arrangements for a loved one when a death occurs. funeralandcemetery@net-informer.com
Gravesite Masters: Based in Kansas, Gravesite Masters offers a variety of headstone options, and funeral supplies. Also has helpful resource links on the site.
Hannah's Prayer: Hannah's Prayer provides Christian support for fertility challenges. Hannah's Prayer
P.O. Box 5534
Maryville, TN  37802

281-485-8986 Telephone
Hayden's Helping Hands: Hayden's Helping Hands is a non-profit foundation who helps families in the midst of tragedy. Hayden's Helping Hands assists Oregon families after the birth of a stillborn baby by paying for a portion or all of their hospital delivery medical expenses. As the founder of this non-profit, Rebekka was determined to bring Hayden's Helping Hands to life through the memory of their daughter. Hayden's Helping Hands
P.O. Box 2041
Clackamas, OR  97015

Email: admin@haydenshelpinghands.com
Helping Hand After Neonatal Death: Reaches out to families who have lost a baby. Has support groups in California for families living in the counties of Santa Clara, Alameda, Contra Costa, and parts of San Benito and San Joaquin. Helping Hand After Neonatal Death
P.O. Box 341
Los Gatos, CA  95031-0341

888-908-4263 Telephone
info@handonline.org
HOPES: Helping Other Parents Endure Sadness. Provides a place for parents and families who have lost to share their thoughts, feelings and memories about their loved ones. HOPES
P.O. Box 103
Valley View, TX  76272

940-668-2642 Telephone
hopesoftexas@yahoo.com
IRIS: Infants Remembered In Silence. Meets the unique needs of parents who have experienced the death of a child. Offers education and resources to families, friends, and professionals. IRIS
101 NW Third St.
Fairbault, MN  55021

507-334-4748 Telephone
iris@qwestoffice.net
Journey of Hope: Grief support for children ages 3 - 18. Based in Plano, Texas (972) 964-1600
Journey To Jordan: Ministry for families dealing with infertility and adoption. Journey To Jordan
4511 E. Gatewood Road
Phoenix, AZ  85024-6938

Kaplan, Dr. Lina: Specializes in grief and infant loss therapy in the Southern California area. Kaplan, Dr. Lina
9911 W Pico Blvd
#507
Los Angeles, CA  90035

310-277-4305 Telephone
DrLinaKaplan@aol.com
Lavender Tree (service of Care Net): Offers a non-medical perinatal hospice model of care to families in the Perice County, Washington area. Also networks with ohter organizations for those not in the Western Washington area. , WA(253) 770-8697 (ask for Lavender Tree)
Lavendertree@cpcpierce.org
Milkin' Mamas: An organization that donates breast milk to critically ill babies. If you stored breast milk before the death of your baby and you are not sure what to do with it, you may want to consider donating it to this worthy cause.
MISS: Mothers In Sympathy and Support. The contact numbers listed to the right are for Joanne Cacciatore. You can also contact Julie White at 602-584-0805. 602-979-1000 Telephone
602-979-1001 Fax
MISS Foundation: Mothers In Sympathy and Support Foundation. 1-888-455-MISS
Missing Grace Foundation: Provides resources and support for families that have experienced pregnancy loss, infant loss, infertility, or adoption and advocate for comprehensive, patient focused prenatal care for all women. candy@missinggrace.org
Morning Light Ministries: For bereaved Catholic parents who have experienced the death of their baby through ectopic pregnancy, miscarriage, stillbirth or early infant death, including up to one year old. Morning Light Ministries
c/o St. Mary Star of the Sea Church
11 Peter Street South
Mississauga, Ontario  L5H 2G1 Canada

416-969-0545 Telephone
morninglightministry@rogers.com
Now I Lay Me Down To Sleep: A non-profit organization made up of photographers who volunteer their time and services to parents experiencing an early infant loss.
Perinatal Hospice: Offers expectant parents & family members support & grief counseling throughout the mother's pregnancy & birth & death of the baby.
Pregnancy/Infant Loss Center: Center for pregnancy/infant loss. Pregnancy/Infant Loss Center
1415 East Wayzata Blvd
#30
Wayzata, MN  55391

612-473-9372 Telephone
Project Sweet Peas: A non-profit organization run by volunteers across the country, who through personal experience have become passionate about providing comfort to families with children in the intensive care units and to those who have experienced pregnancy and infant loss. Project Sweet Peas
PO Box 793
Belle Vernon, PA 15012
(724) 268-0791
Share: National Share Office. Share
402 Jackson St
St. Charles, MO  63301-2893

800-821-6819
Small Victory (A Small Victory): Provides Loss Kits to parents of children lost through miscarriage, stillbirth, and neonatal loss, as well as training nurses on how to properly deal with these types of loss. liz_allen@comcast.net
Stepping Stones: Offers hope, encouragement, and support to infertile couples. Publishes a bi-monthly newsletter. Stepping Stones
c/o Bethany Christian Services
901 Eastern Avenue NE, P.O. Box 294
Grand Rapids, MI   49501-0294

The Apostolate of Hannah's Tears: Offers prayer support & comfort to the brokenhearted who suffer the pains of infertility, miscarriage, stillbirth, & the adoption process. The Apostolate of Hannah's Tears
280 North Grant Ave
Columbus, OH  43215

theapostolateofhannahstears@gmail.com
The Haven Network: For families whose babies have been given a fatal diagnosis. Walks with the families, if possible, as they grieve the impending loss. The Haven Network
215 N 4th Street
Rockford, IL  61107

(815) 962-1512
info@thehavennetwork.org
Twinless Twins: Organization in Ft. Wayne, Indiana. Twinless Twins
11220 St. Joe Road
Ft. Wayne, IN   46835-9737

219-627-5414 Telephone
UNITE, Inc: Perinatal Grief Support. UNITE, Inc
7600 Central Ave
Philadelphia, PA  19111-2499

888-48UNITE (Toll Free) Telephone
administrator@unitegriefsupport.org
Description
Alveolar Capillary Dysplasia:  This site is dedicated to sharing information about Alveolar Capillary Dysplasia. It is our hope that by spreading the word about ACD we will bring support and interest in the medical community.  
American Pregnancy Association:  Offers a toll-free education and support phone line to assist women and families facing pregnancy loss. APA also provides education services for infertility, pregnancy health, pregnancy complications, etc.  Imler@americanpregnancy.org
BabyGrief.com:  Hope and encouragement for those who have lost a baby.  
BabySteps:  Resource centre for parents and children who have lost a child or sibling.  info@babysteps.com
Caleb Ministries:  Pregnancy and Infant loss support,including infertility. Also provides post-abortion support. Supplies memory boxes to parents of stillborn babies.  info@calebministries.org
Cradle of Wings:  A song of comfort in th loss of a child.  
Empty Arms:  This is a working support group dedicated to sorting out our feelings surrounded the loss of our only child/ren to adoption and how we cope with that loss in our daily lives.  
Families for HoPE:  Nonprofit organization offering support and education to families of infants and children diagnosed with holoprosencephaly (HPE).  info@familiesforhope.com
GloryBabies:  To acknowledge and celebrate the lives of our babies that have died during pregnancy or in infancy and to network with other families who have experienced a similar loss.   GloryBabies@ChildrenAreAGift.com
Haloes:  Provides numerous links to other sites pertaining to pregnancy and infant loss as well as informative information.  
Hannah's Prayer:  Hannah's Prayer offers Christian support to couples facing infertility or the loss of a child at any time from conception through early infancy.  
Heavenly Angels In Need:  A ministry that sews for babies in the NICU as well as makes burial gowns for infants who have died.  
Heavens Gain:  Provides small burial caskets for miscarried and early stillborn babies.  
Help To Heal:  List of accredited counselors in the UK.  
Helping After Neonatal Death:  Reaches out to families who have lost a baby. Has support groups in California for families living in the counties of Santa Clara, Alameda, Contra Costa, and parts of San Benito and San Joaquin. 480-995-6102 or 888-908-HAND.  info@handonline.org
Hope and Healing Connection:  Women united by one faith in the Lord and one common loss - the loss of a child. Based in Australia.  connect@hopeandhealingconnection.com
Information For Genetic Professionals:  Information on genetics.  
Journey Of Hearts:  Journey of Hearts is a healing place in cyberspace.  
Letters To Sarah, Surviving Stillbirth:  Supports grieving parents of infants. Whether from miscarriage, stillbirth, neonatal loss, or SIDS. we all share in the loss of our babies.   
Library of Life:  A place to post pictures, leave messages of hope and to light a candle of tribute.  amanda.hale@libraryoflife.org
Little Hero.com:  Little Hero offers two beautiful top quality Baby Memory Books for journaling the details of a loved baby who dies.One for use with infants who spent time in an NICU, and another for use by families experiencing a stillbirth or a late miscarriage.   niestrath@juno.com
MemoryJar:  Contains pages of creative ideas for planning memorial and funeral services. Offers gift item that can be purchased on-line.  nancy@memoryjar.org
Memory-of.com:  Helps families create an everlasting memorial and provides a place to cherish and share a loved one's life through photographs, poems, music, video and heartfelt reflections.  amanda.hale@libraryoflife.org
Miscarriage Support Forum:  Covers issues including pregnancy and infant loss, trying to conceive aftr a loss, pregnancy after a loss, & raising children after a loss. Must registerto participate.  
MISS Foundation:  Mothers In Sympathy and Support (MISS) is dedicated to supporting parents one to one after the death of an infant or young child. Referrals to peer contacts and ancillary organizations are offered.  
Missing Our Children in Indiana:  Online email support group geared toward families in Indiana who have experienced miscarriage, ectopic pregnancy, stillbirth, or infant loss.  
My Forever Child:  Beautiful Keepsakes for parents who have lost a baby to miscarriage, stillbirth, or early infant death.  
My Very Own Angel:  Offers a variety of support to families after the loss of a baby such as online support, donates teddy bears to hospitals, sells MVOA t-shirts, and gives answers to families who are asked tough questions following their loss.  myveryownangel@gmail.com
National Stillbirth Society:  Fights for S.A.D.S. (Sudden Antenatal Death Syndrome), which is when babies die in the womb of an unknown cause.  
Operation Angel:  A miscarriage and child loss ministry.  
Paracletia, Inc.:  One aspect of this ministry is their beautiful Azaela Garden that is a place of remembrance for those who have lost a baby to miscarriage or abortion.   
Portraits By Dana:  Portraits by Dana - specializing in one-of-a-kind pencil portraits drawn from your photographs. Life-like portraits or fantasy type portraits can be created to honor the memory of your little one who will live in your heart forever.  dana@portraitsbydana.com
Remembered Forever:  Gives families the opportunity to build personalized memorials, dedicated to their loved ones.  info@remembered-forever.org
Remembering Our Babies:  Works with local, state & National leaders to obtain a National Day of Remembrance recognizing the need for community education & awareness when a family loses a baby to miscarriage, stillbirth, or neonatal death.  jovigirl@houston.rr.com
Share:  SHARE is an organization that serves those who are touched by the tragic death of a baby through miscarriage, stillbirth, or newborn death.  
SIDS Network:  Reaches out to families who have lost a baby to Sudden Infant Death Syndrome.  sidsnet@sids-network.org
Source Music:  Source Music has released a new recording titled "Together We Can Heal." Sponsored by the Pike's Peak Hospice, this innovative and sensitive recording specifically addresses the difficult issues surrounding the loss of a love one.  
Specialty Postcards.com:  Specialty postcards for conception, new pregnancy, pregnancy testing, pregnancy loss, and encouragement.  
Stepping Stones:  Offers Christian hope, encouragement, and support to infertile couples. Publishes a bimonthly newsletter.  step@bethany.org
Stillbirth Chat Room:  Extensive stillbirth chat room forum with 6 rooms to choose from. Look for the link in the left frame to the "Stillbirth Chat Room".  
Stillbirth Support:  This site is full of stillbirth information including causes, definitions, and resources.  
Stillbirthday:  If you are miscarrying right now, or have just found out that when your pregnancy is over your baby will likely not survive, this website is the right place for you.
The Potter's Syndrome Support:  Support for families who have lost a baby to Potter's Syndrome.  potterssyndrome@hotmail.com
The Unborn Memorial:  A place where one can create a memorial for their unborn child. (Click on The Memorial on their homepage).  
Unborn Angels:  A place to remember and appreciate babies that died too soon.  
Vasa Previa Foundation:  Provides information on Vasa Previa as well as Sophie's Walk.