Infant Loss Organizations
The following is a list of infant loss organizations. If you discover an organization that is not listed here and you would like it reviewed and added to this list, please contact Rebekah Mitchell with the details. If you find a link to a resource that is no longer active, please contact us and let us know. We will remove any outdated information you discover while browsing this list.
Alveolar Capillary Dysplasia (ACD) Association
The Alveolar Capillary Dysplasia Association (ACDA) is a group of parents throughout the world who has experienced a common tragedy - the death of a baby due to Alveolar Capillary Dysplasia (ACD). The purpose of the ACDA is to gather and share information, provide a supportive environment to families and encourage research related to ACD.
American Pregnancy Assocation (APA)
Offers a toll-free education and support phone line to assist women and families facing pregnancy loss. APA also provides education services for infertility, pregnancy health, and pregnancy complications.
Angel Names Association
Assisting families of stillborn children through programs designed to provide financial assistance for end-of-life expenses and counseling services.
Resource center for parents and children who have lost a child or sibling.
Bethany Christian Services
Formerly named Stepping Stones, this infertility and pregnancy loss ministry by Bethany Christian Services was founded by three women who were searching for Christian answers to the questions encountered in their personal struggles with loss. The founders named their ministry Stepping Stones with the hope that, like properly placed stones across a running stream, Stepping Stones would build a bridge to guide travelers across the waters of discouragement, loneliness, and loss that are often part of the infertility experience.
BirthWaves is a non-profit organization that provides doula services to families who experience pregnancy and infant losses. We are not doctors, nurses or counselors. We are trained and certified agency of doulas who are specialized in offering bereavement support to families of babies and small children.
Pregnancy and Infant loss support,including infertility. Also provides post-abortion support. Supplies memory boxes to parents of stillborn babies.
Center for Loss in Multiple Birth (CLIMB)
Parents throughout the United States, Canada, Australia, New Zealand and beyond who have experienced the death of one or more, both or all of our twins or higher multiples at any time from conception through birth, infancy and childhood.
Cradle of Wings
A song of comfort in the loss of a child.
Our mission is to help families in need when they are faced with one of the most difficult events in life - the loss of a child.
Through our own experience we learned that there are people willing to help, people who are there for you when you need it most.
We hope to spread that same love, understanding and support . While we cannot take away the pain we hope to ease some of the financial burden. By taking some of the financial burden the family can focus on what matters- taking care of and supporting each others' emotional health.
This is a working support group dedicated to sorting out our feelings surrounded the loss of our only child/ren to adoption and how we cope with that loss in our daily lives.
Families for HoPE
Nonprofit organization offering support and education to families of infants and children diagnosed with holoprosencephaly (HPE).
Promotes infant health and survival during the prenatal period through two years of age. They do this through advocacy, education and research. SIDS and other infant death bereavement services are also part of their mission.
A Christian organization that publishes a free newsletter for families who have lost children of any age for any reason.
Based in Kansas, Gravesite Masters offers a variety of headstone options, and funeral supplies. Also has helpful resource links on the site.
Grieve Out Loud
Pregnancy and Infant Loss Q&As. If there is one thing for certain, there are millions upon millions of questions that emerge in our lives after pregnancy and infant loss. While some questions will unfortunately never be answered, we would like to offer some comfort in real life answers to some of your other questions.
Offers Christian support to couples facing infertility or the loss of a child at any time from conception through early infancy.
We offer prayer support and comfort to the brokenhearted who suffer the pains of infertility at any stage of life, difficult pregnancy, miscarriage, stillbirth, the loss of a child and the adoption process.
The Haven Network, Northern Illinois' perinatal hospice and bereavement center, provides companionship on the grief journey to families who are facing a terminal diagnosis of their pre-born or newborn baby. The Haven Network also supports those families who have lost a baby through miscarriage, stillbirth, ectopic pregnancy, SIDS and early infant death.
Hayden's Helping Hands
Non-profit foundation who helps families in the midst of tragedy. Assists Oregon families after the birth of a stillborn baby by paying for a portion or all of their hospital delivery medical expenses.
Heavenly Angels In Need
A ministry that sews for babies in the NICU as well as makes burial gowns for infants who have died.
Provides small burial caskets for miscarried and early stillborn babies.
Helping Hand After Neonatal Death (HAND)
Reaches out to families who have lost a baby. Support groups exist in California for families living in the counties of Santa Clara, Alameda, Contra Costa, and parts of San Benito and San Joaquin.
Infants Remembered In Silence (IRIS)
Meets the unique needs of parents who have experienced the death of a child. Offers education and resources to families, friends, and professionals.
Information for Genetic Professionals
Information on genetics.
Journey of Hearts
You are invited to join the journey of recovering from losses and significant life changes. This is a process that does not occur over night, it may take weeks, months, years, or even a life time-- depending on the person and the type of loss. One doesn't just "get over" loss. There is no "perfect" or "right" or "correct" way to process a loss. Each person's experience, like each grief experience, will be unique. Journey of Hearts was designed to be a Healing Place with resources and support to help those in the grief process following a loss or a significant life change.
Journey of Hope
Grief support for children ages 3 - 18. Based in Plano, Texas.
A unique and free resource devoted to helping you memorialize and remember your loved one. Sharing and collecting your memories is important in the healing process — both for you and others who have loved them. It is something tangible that you can hold on to; something to look at or go to when you want to remember.
Helps families create an everlasting memorial and provides a place to cherish and share a loved one's life through photographs, poems, music, video and heartfelt reflections.
Mothers In Sympathy and Support (MISS) is dedicated to supporting parents one to one after the death of an infant or young child. Referrals to peer contacts and ancillary organizations are offered.
Missing Grace Foundation
Missing GRACE Foundation is a national nonprofit organization that provides education and bereavement materials for Professional Care Providers as well as resources and support for families that have experienced a pregnancy loss, infant loss, infertility or adoption. The heart of the mission of G.R.A.C.E. is helping families Grieve, Restore, Arise, Commemorate and Educate.
Missing Our Children (Indiana)
Online support group geared toward families in Indiana who have experienced miscarriage, ectopic pregnancy, stillbirth, or infant loss.
Morning Light Ministry
A Catholic ministry for bereaved mothers and bereaved fathers who have experienced the death of their baby through ectopic pregnancy, miscarriage, stillbirth or infant death up to one year old. This Catholic ministry also welcomes bereaved parents of other Christian denominations, bereaved parents of other faiths and bereaved parents of no religious affiliation who are struggling with the very notion of faith.
The NEC Society is the world’s first and only activist-based, clinician/family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own babies to NEC.
Paracletia, Inc. was created to provide confidential, compassionate pastoral care that can be missing in today's society. Those who have experienced loss often feel isolated, alone, devalued and unimportant to God. The thought that "God does not care for me" is seldom voiced, but often affects the individual's interpersonal relationships at home and at work.
Perinatal Hospice and Palliative Care
Offers expectant parents and family members support and grief counseling throughout the mother's pregnancy and the birth and death of the baby.
Prenatal Partners for Life
Prenatal Partners for Life is a group of concerned parents (most of whom have or had a special needs child), medical professionals, legal professionals and clergy whose aim is to support, inform and encourage expectant or new parents.
We offer support by connecting parents facing an adverse diagnosis with other parents who have had the same diagnosis. We have many resources such as adoption agencies with clients waiting to adopt and love a special needs child should a parent feel they could not care for them.
We believe each child is a special gift from God.
Potter's Syndrome Support
Whether your a family whose baby has just been diagnosed with Potter's Syndrome (Renal Agenesis, Potter's Sequence) or a family member or friend, or even someone who already has lost a baby to Potter's Syndrome and is looking for answers, this website was made for you.
Pregnancy Infant Loss Center
Information center for pregnancy and infant loss.
Project Sweet Peas
A non-profit organization run by volunteers across the country, who through personal experience have become passionate about providing comfort to families with children in the intensive care units and to those who have experienced pregnancy and infant loss.
Remembering Our Babies
Works with local, state and National leaders to obtain a National Day of Remembrance recognizing the need for community education and awareness when a family loses a baby to miscarriage, stillbirth, or neonatal death.
Serving those whose lives are touched by the tragic death of a baby through pregnancy loss, stillbirth or in the first few months of life; providing support toward positive resolution of grief experienced at the time of, or following the death of a baby. This support encompasses emotional, physical, spiritual, and social healing, as well as sustaining the family unit.
Sudden Infant Death Syndrome (SIDS) Network
Reaches out to families who have lost a baby to Sudden Infant Death Syndrome.
The mission of the Stillbirthday Global Network is to validate a pregnancy loss as the birth, and death, that it is. We do this in part through printable birth plans and doulas who can support families in person prior to, during, or after birth. We aim to come alongside families from the very beginning of their parenting journey, whether through rearing or grieving, and provide support for birth in any trimester.
Twinless Twins Support Group, International (TTSGI) exists to provide a safe and compassionate community for twinless twins to experience healing and understanding. We provide support for twins and other multiples who have lost their twin due to death or estrangement at any age.
Unite, Inc., a non-profit organization, has been providing grief support following the loss of a baby, including miscarriage, ectopic pregnancy, stillbirth and infant death to parents in the Philadelphia area since 1975.
Vasa Previa Foundation
The International Vasa Previa Foundation is an all volunteer charity organized to provide prevention and detection information and bereavement support to the general public and professionals regarding the potentially fatal fetal condition known as vasa previa..