Loss and Outreach Organizations
M.E.N.D. Mommies Enduring Neonatal Death
M.E.N.D. is a Christian, non-profit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death. We publish free bi-monthly magazines, hold commemorative ceremonies, and host a variety of support groups throughout the nation. M.E.N.D. is a place for families to connect, share their unique story of loss, and learn to live life without your precious baby. Together we are breaking down the barriers associated with the isolation and sadness of pregnancy and infant loss as we strive to turn our children's lives into legacies.
The following is a list of additional infant loss organizations. If you discover an organization that is not listed here and you would like it reviewed and added to this list, please contact Rebekah Mitchell with the details. If you find a link to a resource that is no longer active, please contact us and let us know. We will remove any outdated information you discover while browsing this list.
Global Hydranencephaly Foundation
Global Hydranencephaly Foundation is a 501c3 working to ensure the preservation of human rights for individuals diagnosed with hydranencephaly, a rare neurological condition that presents as the absence of the cerebral hemispheres to a great degree. We provide advocacy services and individualize family support from the moment of diagnosis, through life and bereavement. Visit the following website for more information www.ghf.life/legal
Alveolar Capillary Dysplasia (ACD) Association
The Alveolar Capillary Dysplasia Association (ACDA) is a group of parents throughout the world who has experienced a common tragedy - the death of a baby due to Alveolar Capillary Dysplasia (ACD). The purpose of the ACDA is to gather and share information, provide a supportive environment to families and encourage research related to ACD.
A Memory Grows
A Memory Grows is a 501(c)(3) charitable organization that serves as an outreach to grieving parents, and as a resource to hospitals, clinics, hospice groups, churches and other nonprofit organizations.
American Pregnancy Assocation (APA)
Offers a toll-free education and support phone line to assist women and families facing pregnancy loss. APA also provides education services for infertility, pregnancy health, and pregnancy complications.
Angel Names Association
Assisting families of stillborn children through programs designed to provide financial assistance for end-of-life expenses and counseling services.
Avery & Aubrey's Way
Avery & Aubrey's Way was created to assist families experiencing financial hardship that occurred after the neonatal death of a newborn infant, as well as provide emotional and spiritual support during their time of loss.
Baby Steps
Resource center for parents and children who have lost a child or sibling.
Birthwaves
BirthWaves is a non-profit organization that provides doula services to families who experience pregnancy and infant losses. We are not doctors, nurses or counselors. We are trained and certified agency of doulas who are specialized in offering bereavement support to families of babies and small children.
Caleb Ministries
Pregnancy and Infant loss support,including infertility. Also provides post-abortion support. Supplies memory boxes to parents of stillborn babies.
Center for Loss in Multiple Birth (CLIMB)
Parents throughout the United States, Canada, Australia, New Zealand and beyond who have experienced the death of one or more, both or all of our twins or higher multiples at any time from conception through birth, infancy and childhood.
Cradle of Wings
A song of comfort in the loss of a child.
Churchill Insurance
Coping with death and grief – The bereavement process explained
Colette Louise Tisdahl Foundation
Our mission is to improve outcomes of pregnancy, childbirth, infancy, and prematurity, as well as assist in the grieving process through financial assistance, education, and advocacy.
Faces of Hope
Faces of Hope aims to raise awareness on the long term emotional effects of life after infant loss. We provide keepsake momentums to local hospitals, birthing centers and families as a means to start the healing process for grieving and restoration.
Families for HoPE
Nonprofit organization offering support and education to families of infants and children diagnosed with holoprosencephaly (HPE).
First Candle
Promotes infant health and survival during the prenatal period through two years of age. They do this through advocacy, education and research. SIDS and other infant death bereavement services are also part of their mission.
Footprints Ministry
A Christian organization that publishes a free newsletter for families who have lost children of any age for any reason.
Grieve Out Loud
Pregnancy and Infant Loss Q&As. If there is one thing for certain, there are millions upon millions of questions that emerge in our lives after pregnancy and infant loss. While some questions will unfortunately never be answered, we would like to offer some comfort in real life answers to some of your other questions.
Hannah's Prayer
Offers Christian support to couples facing infertility or the loss of a child at any time from conception through early infancy.
Hannah's Tears
We offer prayer support and comfort to the brokenhearted who suffer the pains of infertility at any stage of life, difficult pregnancy, miscarriage, stillbirth, the loss of a child and the adoption process.
Haven Network
The Haven Network, Northern Illinois' perinatal hospice and bereavement center, provides companionship on the grief journey to families who are facing a terminal diagnosis of their pre-born or newborn baby. The Haven Network also supports those families who have lost a baby through miscarriage, stillbirth, ectopic pregnancy, SIDS and early infant death.
Heaven's Gain
Provides small burial caskets for miscarried and early stillborn babies.
Helping Hand After Neonatal Death (HAND)
Reaches out to families who have lost a baby. Support groups exist in California for families living in the counties of Santa Clara, Alameda, Contra Costa, and parts of San Benito and San Joaquin.
Indiana Cuddle Cot Campaign
To provide education to the public in regards to Pregnancy and Infant Loss and provide support to families who have experienced the passing of a child. We provide bereavement assistance to hospitals and their staff to ensure that families receive the best possible care for any birthing outcome. We will also accept donations which goes toward our goals of placing at least one Cuddle Cot within every hospital in the state of Indiana.
Infants Remembered In Silence (IRIS)
Meets the unique needs of parents who have experienced the death of a child. Offers education and resources to families, friends, and professionals.
Information for Genetic Professionals
Information on genetics.
Journey of Hearts
You are invited to join the journey of recovering from losses and significant life changes. This is a process that does not occur over night, it may take weeks, months, years, or even a life time-- depending on the person and the type of loss. One doesn't just "get over" loss. There is no "perfect" or "right" or "correct" way to process a loss. Each person's experience, like each grief experience, will be unique. Journey of Hearts was designed to be a Healing Place with resources and support to help those in the grief process following a loss or a significant life change.
Journey of Hope
Grief support for children ages 3 - 18. Based in Plano, Texas.
Korie and Kacie Foundation
No parent should have to worry about medical bills and funeral expenses after a child has passed away. The following are some ways we hope to help other families through this tragic event:
We can go to the hospital and/or funeral home and create a 3D keepsake of your child’s hand or foot; we can also do a belly cast for you.
We can help with the cost of medical, funeral, and other related expenses.
We can help with making decisions about funeral arrangements and suggestions related to the funeral/burial.
We can send meals, set up a food train, gift cards for groceries, gas, parking, and etc.
We can send a care package to the family.
We can provide local and online support groups after this devastating loss.
Life's Little Miracles
Life’s Little Miracles' products include donated and purchased items such as diapers, care items, a baby hat, shirt, and onesie in size preemie or newborn. The products also include helpful information and resources related to the preemie journey in the NICU and beyond, coupons and samples from our corporate sponsors, as well as a descriptive Life’s Little Miracles, Corp. contact information card in the event that the families need additional support.
Little Wings
Little Wings, Inc. was founded after hearing stories of families who - because of financial burdens or lack of information - had limited options in burying their miscarried child. Little Wings, Inc. seeks to provide families with a beautiful and lasting resting place for their new little angel - their new little wings.
Love, Jessica
Love, Jessica is a 501(c)3 Non-Profit Organization designed to financially assist families with medical and funeral expenses after a miscarriage or stillbirth. Our mission is to ease the financial burden as well as help start the healing process.
Love & Loss Project
The Love & Loss Project offers free monthly Retreats, healing programs & private sessions for women and couples across the globe.
Maryville University - Postpartum Resources
Maryville University information about Postpartum Depression - Information about the causes, symptoms, and treatments of postpartum depression.
Memory Jar
A unique and free resource devoted to helping you memorialize and remember your loved one. Sharing and collecting your memories is important in the healing process — both for you and others who have loved them. It is something tangible that you can hold on to; something to look at or go to when you want to remember.
Memorials of Distinction
Some people find that gardening as they grieve, known as ‘grief gardening’, can gently relieve some of the emotional and physical symptoms after the loss of a loved one, particularly a baby or infant.
By being in nature and immersing yourself in it, by touching it, smelling it, working in it, you can help to lower stress levels and reduce inflammation - a precursor to heart disease, depression and diabetes. Gardening also allows you to grieve together by doing an activity that is therapeutic such as planting and growing food.
Memorials of Distinction have created a guide to the benefits of gardening when coping with grief. The guide highlights:
The benefits of gardening that help to reduce painful emotions
Essential steps for starting your garden
How gardening can reduce feelings of grief
Miss Foundation
Mothers In Sympathy and Support (MISS) is dedicated to supporting parents one to one after the death of an infant or young child. Referrals to peer contacts and ancillary organizations are offered.
Missing Grace Foundation
Missing GRACE Foundation is a national nonprofit organization that provides education and bereavement materials for Professional Care Providers as well as resources and support for families that have experienced a pregnancy loss, infant loss, infertility or adoption. The heart of the mission of G.R.A.C.E. is helping families Grieve, Restore, Arise, Commemorate and Educate.
Morning Light Ministry
A Catholic ministry for bereaved mothers and bereaved fathers who have experienced the death of their baby through ectopic pregnancy, miscarriage, stillbirth or infant death up to one year old. This Catholic ministry also welcomes bereaved parents of other Christian denominations, bereaved parents of other faiths and bereaved parents of no religious affiliation who are struggling with the very notion of faith.
NEC Society
The NEC Society is the world’s first and only activist-based, clinician/family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own babies to NEC.
NechamaComfort
NechamaComfort supports Jewish families who have suffered pregnancy and infant loss.
Perinatal Hospice and Palliative Care
Offers expectant parents and family members support and grief counseling throughout the mother's pregnancy and the birth and death of the baby.
Pierced Forever Foundation
Funerals shouldn't cost families greater grief. Pierced Forever Foundation is a nonprofit charity that was established in 2020 in memory of Pierce David Movitz. Our mission is to provide support to parents who have lost their baby. We believe that while we cannot ease the heartache associated with the loss of a child, we can help to alleviate some of the stress that follows.
Potter's Syndrome Support
Whether your a family whose baby has just been diagnosed with Potter's Syndrome (Renal Agenesis, Potter's Sequence) or a family member or friend, or even someone who already has lost a baby to Potter's Syndrome and is looking for answers, this website was made for you.
Project Sweet Peas
A non-profit organization run by volunteers across the country, who through personal experience have become passionate about providing comfort to families with children in the intensive care units and to those who have experienced pregnancy and infant loss.
Remembering Our Babies
Works with local, state and National leaders to obtain a National Day of Remembrance recognizing the need for community education and awareness when a family loses a baby to miscarriage, stillbirth, or neonatal death.
Return to Zero: H.O.P.E.
Transforming the Culture of Silence and Isolation Around Pregnancy and Infant Loss
Ronald McDonald of Central Texas
The HOPE Support Group of Healing Hearts provides free bereavement support to help families that have experienced perinatal and infant loss. The complimentary six-week program is held throughout the year on Monday evenings in private spaces at the Ronald McDonald House and is facilitated by a licensed grief counselor. Session dates will vary and at least four individuals must participate in order to schedule a six-week session.
Also provide financial means to inter a child that has been lost due to injury or illness.
SAILS - Stillborn And Infant Loss Support
Stillborn And Infant Loss Support (SAILS) is dedicated to helping those who have lost their child by letting them know that they are not alone.
Share
Serving those whose lives are touched by the tragic death of a baby through pregnancy loss, stillbirth or in the first few months of life; providing support toward positive resolution of grief experienced at the time of, or following the death of a baby. This support encompasses emotional, physical, spiritual, and social healing, as well as sustaining the family unit.
Sudden Infant Death Syndrome (SIDS) Network
Reaches out to families who have lost a baby to Sudden Infant Death Syndrome.
Stillbirthday
The mission of the Stillbirthday Global Network is to validate a pregnancy loss as the birth, and death, that it is. We do this in part through printable birth plans and doulas who can support families in person prior to, during, or after birth. We aim to come alongside families from the very beginning of their parenting journey, whether through rearing or grieving, and provide support for birth in any trimester.
The Colette Louise Tisdahl foundation
Helping Families in Crisis During Pregnancy and Birth Complications
Theravive
Theravive is a network of licensed therapists and psychologists committed to helping people receive the best mental health care available. Through building bridges with others, we continually strive to lower mental health stigma.
Three Little Birds Perinatal
Three Little Birds Perinatal is a fiscally sponsored project by Federation of Neighborhood Centers Philadelphia. We provide pregnancy and infant loss support to families at no cost and never directly solicit them for monetary donations.
Unite, Inc.
Unite, Inc., a non-profit organization, has been providing grief support following the loss of a baby, including miscarriage, ectopic pregnancy, stillbirth and infant death to parents in the Philadelphia area since 1975.
Vasa Previa Foundation
The International Vasa Previa Foundation is an all volunteer charity organized to provide prevention and detection information and bereavement support to the general public and professionals regarding the potentially fatal fetal condition known as vasa previa..
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